ეს საიტი იყენებს cookies, რომ ჩვენ შეგვიძლია მოგაწოდოთ საუკეთესო მომხმარებლის გამოცდილება შესაძლებელი. ქუქი-ფაილი ინახება თქვენს ბრაუზერში და ასრულებს ისეთ ფუნქციებს, როგორიცაა აღიარება, როდესაც თქვენ დაბრუნდებით ჩვენს ვებ-გვერდზე და ეხმარება ჩვენს გუნდს იმის გაგება, თუ რომელი სექციების ნახვა თქვენთვის ყველაზე საინტერესო და სასარგებლოა.
DEBRA გამოუშვებს ახალ EB თემაზე კომიქსს!
დღეს, 2024 წლის EB ცნობადობის კვირეულის განმავლობაში, ჩვენ მოხარულნი ვართ გამოვუშვათ სრულიად ახალი EB თემატური კომიქსები სახელწოდებით "EverBright-ის მცველები".
Developed with significant input from DEBRA members, this brand-new comic, which could be a first for EB, is aimed at children and early teens.
The comic is intended to be both an enjoyable stand-alone read but also a resource to help raise vital awareness and understanding of EB, particularly within schools. The comic could be read in class or an assembly, added to the school library, or is simply something that children can share with their friends.
This latest publication follows hot on heels of last year’s EB themed children’s book, Debra the Zebra, which has the same purpose but is intended for a younger audience.
Both Guardians of EverBright and Debra the Zebra are currently available exclusively for DEBRA members. There is no charge, but if you would like to შემოწირულობა towards the production and postage costs, we would really appreciate it.
Please note we only have limited copies of each, but if you would like to request your free copy, please complete our interest form.
We’ll also make the comic available free of charge through the four NHS EB healthcare centres of excellence, as we did with Debra the Zebra, to help us reach more members of the EB community.
Guardians of EverBright, along with Debra the Zebra, are fantastic examples of how we work together with our members to help raise awareness of EB. We would like to say a huge thank you to all the members who took part in the workshops that helped shape the stories and characters featured in these publications, and to the members who shared feedback at our annual Members’ Weekends. We couldn’t have created these without you.
Thanks also to the team at PO’Sh Creative for all your support with this project.
If you have any ideas for future extensions of our EB literary collection, please do let us know.
We hope you enjoy reading these as much as we did creating them!